Saloni has been diagnosed with Rett Syndrome. She has been recommended for Neuro Regenerative Rehabilitation therapy. The treatment involves a 14-day hospital stay, during which time she will be extensively evaluated clinically. This will be followed by a bone marrow aspiration from which, subsequently, the mononuclear cells will be isolated. These are hematopoietic mononuclear cells which are injected intrathecally through a lumbar puncture and CSF catheter. This is followed by 4 days of intensive physiotherapy, occupational therapy, speech therapy, counselling, and other medical treatment as required.

Saloni is 7 years old and lives in Kolhapur, Maharashtra. She led a normal life till she was 2 years old. One night, unfortunately, she got a high fever and was admitted to the hospital. She did not get well; she was not able to get up, understand anything, eat, go to the washroom, and do her regular activities. The doctor suggested her to undergo treatment and therapies. The family is too poor to bear the expense of the treatment. Her father, Mr. Prajot, passed away due to COVID and her mother, Mrs. Vidya, is a housewife. Saloni has a younger sister named Rudra, who is 3 years old. Now the whole burden and expenses of this family is taken care of by her uncle, who works in a garage as a daily wage labourer. Saloni needs your support to manage her rare disease.

We implore generous hearts like you to come forward and extend your fullest support in this heart-pricking situation for Saloni’s family to make it possible for her to undergo treatment and therapies. Each and every contribution of yours will help her get better and manage her rare disease. 

The approximate cost for the procedure is Rs.4,20,000/-  (Four lakhs twenty  thousand only) Send a contribution by cheque/DD/online in the name of Kokan Kala Va Shikshan Vikas Sanstha.